Current situation: Almost 30,000 on dialysis have the right to travel to the EU and receive life-maintaining dialysis through reciprocal healthcare agreements using the EHIC card.
If an agreement is not reached: Without the EHIC patients would have to pay about 1,000 Euros per week for dialysis. No insurance is available & effectively patients are unable to travel to Europe any more. Very little space in UK units for holiday dialysis.
What we would like to happen: UK citizens to retain simple and safe access to treatment, free of charge, in the EU.
Current situation: Almost 30,000 on dialysis and 37,000 with transplants receive a range of specialist medications needed to maintain life and wellbeing. These include fluids such as those used for peritoneal dialysis. The same rules on packaging, safety and standards are applied across the EU preserving safety and continuity of supply, with no tariffs.
If an agreement is not reached: Many of the drugs are not made in the UK and any delay in supply puts lives at risk. There are suggestions that drugs could be reduced or swapped if necessary which is not safe e.g. in the case of drugs to prevent rejection of transplants.
What we would like to happen: The supply and space for storage of medicines must be protected as a priority. No specialist medicines can be swapped or reduced other than by specialists.
Current situation: Almost 30,000 on dialysis rely on continuous supply of consumables to carry out treatment. Haemodialysis is carried out 3 times a week by 25,500 people and peritoneal dialysis is 4 times a day or overnight by 4,000 people. The availability of tubing, catheters, dressings, dialysers, membranes, needles and much more is vital. With such frequent use, technicians must be able to replace parts and obtain new equipment swiftly to continue the service.
If an agreement is not reached: Much of the equipment needed for dialysis (and to carry out transplants) is not made in the UK and any delay in supply puts lives at risk.
What we would like to happen: The supply and space for storage of equipment and consumables must be protected as a priority.
Current situation: Most goods can currently move between Northern Ireland and Great Britain without checks at the border. .
If a deal is not reached: The Northern Ireland Protocol means there may need to be checks on goods, including medicines, medical devices and consumables, entering Northern Ireland from Great Britain to ensure they meet EU standards.
What we would like to happen: It is essential to avoid delays to the movement of medicines and related items. The unencumbered supply of medicines and consumables must be protected as a priority.
What can you do
Write to your MP
Please write a letter to your MP outlining your concerns and please ask your family and friends to do the same. You can find your MP by clicking here and typing in your postcode.
Please either send your note as an email or post your letter to the MP’s office.
Please send a copy to [email protected], or Policy Department at Kidney Care UK, 3 The Windmills, St Mary’s Close, Turk Street, Alton GU34 1EF. Thank you to everyone that has done this so far.