"If you’re a kidney patient you now have a real opportunity to have your say on the care you receive. It doesn’t always feel that way but when a community comes together and shares their experiences we can all benefit. The Kidney Patient Reported Experience Measure (PREM) puts the patient voice at the forefront of quality improvement and it has already been adopted as a key element of service review by the NHS England’s Getting it Right First Time process so we know that we’re having an impact.
But I’ve never heard about this?
If you’ve never heard of the Kidney PREM then it’s important that you ask your unit or health care team about it. The annual care survey has been running for three years now and almost all units throughout the UK take part. Renal teams and units should be proud that most patients rate their care highly. However we must not be complacent as there have been some clear messages for the renal community to work on as a whole. We need to find ways to reduce the variation in care that patients experience when it comes to needling, patient transport and shared decision making. It has become clear that these are areas that need investigation and improvement and it is only by working together and sharing best practice that we can learn and make changes.
The results remind us that it is vital that patients and clinicians work together as equals. Using patients own expertise and knowledge of their health is instrumental in achieving real, person centred care and we are proud to be at the forefront of this.
Patients are already seeing improvements based on previous results
Already units across the UK are sharing their own examples of how they have used their results to make improvements. Areas for improvement identified by patients under the care of Imperial College Healthcare NHS Trust in London, focused on shared decision making and support. The team discussed their results and put an action plan in place which included setting up new bespoke clinics at times that work better for patients such as in the evenings and with longer appointment times; and increasing the size of their home haemodialysis team in order to support more patients to dialyse at home.
This is just one example but it shows that it’s by listening to you and getting your feedback that we can make change happen and drive improvements in the care services you receive. This year we are encouraging as many people as possible to take part in the survey online. It does not include your name and has nothing on it that could identify you, so please feel free to answer as honestly as possible. Please, take a few moments to fill in the survey today."
The survey is available online in English, Welsh, Urdu and Gujarati
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