The British Kidney Patient Association welcomes today’s announcement from NHS England that funding is finally being granted for the use of eculizumab in the rare condition known as C3 glomerulopathy following a kidney transplant.
Keep up to date with the latest Kidney Care UK news; including information on our latest campaigns and kidney related research.
As part of our grants programme, in December 2016 funded a bowling trip for a group of young kidney patients. Gemma Hockey, Vanda Fairchild and Marie-Louise Turner organised the trip.
Three years ago, in partnership with RCPCH and BAPN we developed and launched infoKID.org.uk (external link), an online resource of information on kidney conditions in children and young people. Today, the Royal College of Paediatrics and Child Health (RCPCH) has produced an evaluation report highlighting the impact it has had and suggestions for new developments.
Karen Smith and her husband Darren have a particular reason to be looking forward to Valentine’s Day this year…
Advice for kidney patients during the cold weather
The first ever national CKD audit shows a worrying lack of urine tests for those most at risk of CKD.
Data from the first ever national Patient Reported Experience survey (PREM) now available to the Clinical Directors