The kidney patient reported experience measure (PREM) is now open and will be collected across the UK throughout June 2019. It is your chance to have your say about your experience of care.
The Kidney PREM survey has been created by patients and professionals working together to produce a report on how kidney patients experience care across the UK. It’s by listening to you and getting your feedback that we can make change happen and improve services. It does not include your name and has nothing on it that could identify you, so please feel free to answer as honestly as possible.
The survey is co-ordinated by the UK Renal Registry and Kidney Care UK, and last year it was completed by 13,770 people in the UK who live with kidney disease and responses were received from 71 adult NHS renal centres across the UK.
You can complete the survey online or your renal unit should have everything you need to complete it on paper. However, please do not take the survey twice - either do it online OR on paper in your unit.
The aim of PREM is to gain a patient focused assessment of how treatment and care is delivered and what aspects of it could be improved. Last year we discovered that most patients continue to rate their overall experience of care highly, and the areas that scored highest centred on access to the renal team, privacy and dignity, patient information and scheduling and planning.
However, the three areas that scored the lowest (transport, needling and shared decision making) remain unchanged from the findings of the 2017 report, highlighting that continued effort needs to focus on improving patient experience in these important areas.
The renal community has been working hard over the past three years to ensure that patients are able to have their say through the Kidney PREM, and that real change is being driven by patients. While it is disappointing the results didn’t show improvement in the three lowest scoring areas, work is being done at a national and local level to improve all three.
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