The 2019 Kidney Patient Report Experience Measure (PREM) results are available now. A big thank you to everyone who took part; we had nearly 16,500 responses from people living with kidney disease. By sharing your views of your own experience of kidney care you are helping to shape improvements to care and outcomes for all kidney patients.
The results have been collected and the PREM 2019 national report is now ready to view below. For those new to PREM, please take a look at our Kidney PREM explained leaflet for a non clinical summary about what the Kidney PREM is about and why it is important for everyone in the kidney community.
This unique survey is building momentum as the tool to help better understand and improve person–centred experience in kidney care. Our vision is that it is used as a driver for change at a local level. The working group behind delivering the Kidney PREM is really keen to see the results embedded and used, alongside other research projects, to develop improvement plans. To better support units in understanding and responding to their results this year we will be providing a resource pack to every unit.
As patients we would encourage you to look at the results data for your unit, talk to your kidney team about your results as well as their plans for improvement. You can view the results online at the PREM portal. You will be able to search the results by question, year, main centre or unit.
There are no easy answers, especially when tackling some big issues like transport or needling, however there are some centres who are getting it right and we would like to better understand why this is and see what they are doing that could be shared.
You can find the final results in the 2019 Kidney PREM report below or on the side of the page.
PREM 2020 is likely to start in the Summer of 2020.
- The 2019 Kidney PREM report (PDF 3MB)
- Kidney PREM explained (4MB) - Patient reported experience of kidney care in the UK 2019
- View the results online on the PREM portal
Some overview stats from the survey:-
- 70 adult renal centres across the UK participated in Kidney PREM 2019, providing 16,469 valid responses, an increase of 2,699 from 2018
- The national picture remains similar across the past three years, but there are some changes amongst renal centres, suggesting potential for improvement
- As found in previous Kidney PREMs, centre differences are more closely related to patient experience than any other characteristic. A patient’s age, treatment type,treatment location, ethnicity and gender have a small effect but are much less important than the treating centre when determining a patient’s experience of renal services
- Patient rating of their Overall Experience remained high, at 6.3 out of 7 for the third consecutive year
- Privacy & Dignity, Access to the Team, Patient Information and Scheduling & Planning continued to be those areas which scored highly
- The issues which continue to impact most negatively on patient experience are Transport, Sharing Decisions About Your Care, Needling and Support, although patients now report the lowest experience within Transport
- There remains no improvement to these areas, which also report the highest variation in scores across centres
- Both Support and Communication are related to Sharing Decisions About Your Care. These areas continue to be the fourth and fifth lowest scored aspects of patient experience
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Professor Donal O’Donoghue OBE 1956 – 2021
Kidney Care UK Chair of Trustees Professor Donal O'Donoghue passed away due to Covid-19 on Sunday 3 January.