The following is where to find further information relating to articles that appeared in Kidney Matters: issue 15.
Pages 4-5: NHS England commits to provide transport for patients using unit based dialysis, thanks to your input!
We are pleased to let you know that the NHS in England has recommended some important improvements in the way transport to and from hospital is delivered, including for people on dialysis. It’s often called ‘non-emergency patient transport’ or ‘NEPTS’ but for the 21,000 people on dialysis it’s the vital way you get to and from your treatment.
Pages 6-7: Celebrating black kidney donors throughout Black History Month
When you think about black history, what springs to mind? Inspirational world leaders and authors, bronze sculptures, music that moves your spirit and food that feeds your soul? Add to this list, the extraordinary things ordinary black people do for kidney patients.
Pages 8-9: Young Adult Kidney Group Virtual celebration 2021
The Young Adult Kidney Group (YAKG) Peer Supporters certainly weren’t alone in hoping that 2021 would see us return to ‘normality’ and host our annual residential weekend away at Mount Cook in Derbyshire. But as the pandemic continued to keep us all apart, we planned our second and newly expanded #YAKGVirtual, this time with ten days of fun and activities on the agenda.
Pages 10-13: Kidney Clinic - Not so sweet: diabetes after transplantation
A diagnosis of diabetes may come as a surprise after a kidney transplant, but it is in fact relatively common. What are the causes of post-transplant diabetes? And how is it treated?
- Clinical guidelines on the detection and management of diabetes post solid organ transplantation
- Information leaflet from North Bristol NHS Trust about new-onset diabetes after transplantation
- Information on very low calorie diets from the NHS
- NHS advice on weight loss and maintaining a healthy weight
- Diabetes UK information on the diabetes check-ups you should receive
Page 24: Kidney disease hasn’t stopped because of the pandemic, and neither have we!
By early March 2020, in the face of the pandemic we recognised that we needed to take urgent action to ensure the needs of kidney patients were not forgotten.
Page 28: Tahira’s vital role within our team here in Bradford
We are very proud of Tahira and grateful to Kidney Care UK for initially funding this role in Bradford 11 years ago. Patients’ experience of care has been greatly enhanced as a result of her important contributions as a key member of the team.
Page 30-31: Nocturnal peritoneal dialysis has given me back my life
We have choices about which modality of dialysis we prefer. With good family support and a reliable service provider, many of us opt for nocturnal peritoneal dialysis (PD). This is the choice made by Alan Colvin on hearing he needed to start dialysis.
Page 36-37: How much do HD patients know about fluid management?
Decisions about how much fluid is removed during haemodialysis (HD) are made at every treatment session. However, it is not clear how involved patients are in these decisions, nor are their understanding and experiences of their fluid management during dialysis well understood. Researchers from Leeds decided to find out.
Page 38: Photography competition ‘The life that I have’
Entering is very simple. All you need to do is send a photo to us which makes you smile, but that also tells us something about you.
- One high resolution digital photograph (no naughty ones!)
- Colour or black and white
- One entry per person
- Attach your photo to an email and in one paragraph tell us why the photograph means something to you. Don’t forget to include your name
- In the subject line, type ‘photo competition’ and send it to [email protected]
Make sure you send your entries to us by 5pm on 31 March 2022.