The following is where to find further information relating to articles that appeared in issue 21 of Kidney Matters.
Pages 4-5: Home dialysis reimbursement – full, fair and timely?
Are kidney patients who dialyse at home getting a raw deal from NHS trusts?
Pages 6-7: How talking helped a London geezer through kidney cancer
It was a bolt out the blue when Kidney Kitchen chef, Paul Ripley, was diagnosed with kidney cancer. Now, minus his left kidney, he is getting his life back on track – with help from family and a Kidney Care UK counsellor.
Pages 8-11: Kidney Clinic - Decisions, decisions. Shared decision making in kidney care
Shared decision making is regarded as a key component of personalised healthcare, but what does sharing decisions mean in practice for kidney patients?
Pages 12-13: “But what would you do, doctor?”
Shared decision making or finding a workable balance between medical information from healthcare professionals and people’s quality of life, can be tricky. GP Sam Finnikin provides useful insight into working out what is important to us and how to share that information to achieve the best outcomes.
Pages 26-27: A GOLDen opportunity to help Black kidney patients receive a living donor transplant
The Gift of Living Donation (GOLD) peer buddy phone scheme – working closely with Frank Dor, Consultant Transplant Surgeon – is showing how simple conversations can help bring about change for people from Black communities awaiting a kidney transplant.
Pages 28-30: The no-brainer kidney donation to my friend
When Josh Hall saw his friend Lois Denham’s health deteriorating due to kidney disease, he knew donating one of his kidneys was the right thing to do.
Pages 36-37: Better treatments needed to OuTSMART transplant failure
Routine antibody screening and maximising immunosuppression do little to prevent transplants from failing in people with antibodies to their donor kidney – this is the conclusion of OuTSMART, a clinical trial conducted in UK transplant centres.
- Stringer D, et al. Optimized immunosuppression to prevent graft failure in renal transplant recipients with HLA antibodies (OuTSMART): a randomised controlled trial. eClinicalMedicine; published 11 January 2023
- King’s College London press release. Optimising immunosuppression based on antibody testing does little to reduce kidney transplant failure rate. 17 January 2023
Page 38: Are you receiving your full benefits entitlement?
Living with chronic kidney disease can affect your finances as well as your health.